Endometriosis, a chronic and often debilitating condition, is facing a global crisis. The world is waking up to the urgent need for action, as two recent studies reveal a shocking lack of recognition and support for those suffering from this disease.
The first study, published in The Lancet, highlights the vast disparities in endometriosis care and guidance across the globe. With an estimated one in ten women and girls affected, it’s alarming to learn that nearly half of all countries lack any official policies or clinical guidelines for diagnosis and treatment. This means that millions of individuals are left to navigate their healthcare journey without proper support and guidance.
But here’s where it gets controversial… Only 7% of countries have government-endorsed clinical care guidelines, leaving the majority of patients and healthcare providers without a clear roadmap. The study also reveals that many low- and middle-income countries are severely lacking in formal guidance, contributing to wide inconsistencies in care. Assistant Professor Devon Evans, the first author of the study, emphasizes, “Our findings show that many people are left to their own devices in regions with no official recommendations.”
Professor Stacey Missmer, a senior author, adds, “Access to culturally sensitive and locally applicable care guidelines is crucial for improving outcomes.”
And this is the part most people miss… The second study uncovers an even more concerning reality. Half of all countries have no policy information available at all regarding endometriosis. Despite some countries raising awareness and placing it on political agendas, only a handful have adopted national strategies. Dr. David Adamson, a co-senior author, points out, “The absence of healthcare policies leaves patients and clinicians without a solid foundation, potentially exacerbating existing barriers to accessing necessary services.”
The authors call for a collaborative effort between governments, medical societies, and patient advocacy groups to establish clear and region-specific care standards. They believe this is crucial to reduce diagnostic delays and ensure equitable access to treatment worldwide.
So, what can be done? The Lancet editorial urges governments to treat endometriosis as a chronic disease requiring a coordinated national response. The WHO also recognizes the impact of endometriosis and emphasizes the need for policies and guidelines to translate into tangible improvements in the lives of those affected.
It’s time for the world to unite and take action. Endometriosis deserves the attention and resources it needs to improve the lives of millions.